In front of the door of their pavilion in Lachelle (Oise), the doormat sets the tone. It reads: “Paradise is here. The family is cheerful, laughing and above all combative. Marianne, 36 years old, Ludovic, 35 years old, Alyssa, 9 years old, Nathan, 8 years old are fighting so that the youngest, Aline, 4 and a half years old, can one day overcome the illness that has followed her since she was 4 months old.
So, in November, they decided to create an association “Aline in the fight against leukemia” and to organize events to raise public awareness of pediatric cancers. And in particular this leukemia which does not let go of the little blonde.
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“For four years, we have been navigating between stabilizations, relapses and remissions. But we decided not to feel sorry, smiles Ludovic. We want to shake things up. Aline is followed at the Robert-Debré hospital in Paris. Doctor Benoît Brethon, from the hematology department, has launched a research protocol on childhood cancer. All the funds we raise go there. We want to be as transparent as possible. »
More than 67,000 euros raised last year
If Aline is a fighter, so are her parents. For more than a year, they have been moving heaven and earth to find companies that could engage in sponsorship. They also raise awareness by organizing unifying events. Last year, in particular, thanks to their race, they managed to collect more than 67,000 euros. This year, they are therefore leaving for a round.
“This Sunday, we are relaunching the race with a raffle, concerts, entertainment. The municipalities of Lachelle, Compiègne and many others support us. Carrefour, but also associations such as Onco Oise or Le Rire Médecin are present. Élodie Gossuin will also be there. Ludovic does everything to attract people. With an author, the parents even released a novel simply titled “Aline” for sale on online sales platforms.
Lachelle (Oise), May 11. Aline’s family is organizing a new race to fund a protocol set up by Robert-Debré Hospital in Paris to find a way out for Aline and children suffering from this type of pediatric leukemia. LP/S.F.
Behind their contagious good humor and unfailing energy, the family only wants to remember the good times. “Either we are in a vicious circle, or we are in a virtuous circle. We choose ! But several times, we went not very far from the drama. We want things to move, ”recognizes the father.
From the height of her 4 and a half years, Aline realizes in her own way what her parents do for her: “Dad and mom, they do all that to get medicine to heal. The little doll relapsed in January 2021 and has since been in remission. But the treatment is heavy and his child’s body had a hard time coping with the chemotherapy.
“Leukemia is a circulating cancer. It goes everywhere »
“These are adult treatments adapted to the size and weight of the child, explains Marianne. But their metabolism is not the same and had a hard time enduring everything. She caught a mild virus recently, and she had to stay home for a week. She was exhausted. She only recently started school again. »
Chemotherapy, Aline has been living with since she was 4 months old. The treatment must continue until July 2023. Every day, she takes an oral syrup. Once a month, it’s the intravenous, then every two months, it’s the lumbar puncture with injection of chemotherapy.
“Leukemia is a circulating cancer. It goes everywhere, ”explains his mother, who found him some pretty headbands to hide the regrowth of his hair. “She is not ready to take it off yet, but she is very flirtatious. So, we found some with pretty patterns. “As long as Aline is not definitively cured, her parents will continue to fight. And even after, they confide.
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Ludovic, the dad, wants to offer inter-company races because now he has all the timing equipment thanks to a partner company. “In France, 2,500 children suffer from pediatric cancer and 500 die from it. If at our level, we can act, a little, if all those who feel concerned, who are aware, put a stone in the building, we will succeed. »
This Sunday, 2, 5 and 10 km races or walks in Lachelle (Oise). Departures at 10 a.m. and 4 p.m., Place René-Coty. Registration (10 euros) on www.protiming.fr. Information: coursealine@gmail.com or on the Facebook page: Aline in the fight against leukemia.
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